Contact Us
TSW Patient Registry
Sponsor
ITSAN
P.O. Box 303
Dacula, GA 30019
USA
itsan.org
Registry Contact
Michelle Li / Kathy Tullos
registry@itsan.org
Institutional Review Board (IRB)
North Star Review Board
learningirb.org
info@northstarreviewboard.org
An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at info@northstarreviewboard.org.
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Visit the National Organization for Rare Disorders home page at rarediseases.org.
