A global registry to study TSW, hosted by
NORD®’s IAMRARE® platform
TSW Patient Registry
For more information about how to register, click here.
For Patients
Get Involved
Information collected during this study is intended to provide opportunities for patients and researchers to collaborate on TSW research.
For Researchers
Drive Research
This is a unique TSW Patient Registry. Are you interested in using the data collected to further your research into TSW?